Upcoming Webinars
From Insights to Impact: The Evolving Rare Disease Landscape in 2025 and Beyond
February 26, 2025 @ 12:00 PM Eastern
In honor of Rare Disease Month, experts from Sanofi, Novartis and Definitive Healthcare will explore how the rare disease space has evolved and where it is heading in 2025.
This roundtable will provide key insights into how breaking down data silos, fostering collaboration, and focusing on rare diseases within the broader pharma ecosystem can accelerate the development of life-changing therapies.
Key discussion points will include:
- How Data Access Leads to Better Outcomes: Discussing how seamless access to integrated data—from clinical trials and real-world data- can enhance drug development, support better trial designs, and help pharma companies more efficiently address unmet medical needs in rare diseases.
- How to Improve Collaboration: Highlighting the critical need for collaboration between pharma companies, healthcare providers, academic institutions, and patient advocacy groups to drive more effective research and development and improve patient access to new therapies.
- The Future of Rare Disease in Pharma: Reflecting on how the increased focus on rare disease research, combined with better data access, will shape the future of drug development, personalized medicine, and patient care. Panelists will explore how the rare disease space has evolved and where it is heading in the coming years.
Speakers:
Alex Paragios, Regional Business Director, Sanofi
Brian Garino, Director, Advanced Analytics, Novartis
Moderator:
Rohit Marwah, AVP, Insights and Analytics, Definitive Healthcare